I'm in the June 2012 BDC, but was pointed here by a friend on there. I don't know if you're looking for information or just for a showing of hands, so sorry if I've gone overboard on my reply!
My DS has 7 hemangiomas on his skin and one small one on his liver (that we know of). Only one was visible at birth, which is a compound one (partly under the skin, partly on the surface). The other 6 are all on the surface and appeared in his first 2 months. They're very small up to fairly small (~0.5cm - 3cm across), and are on his arms, chest, back and foreskin. None of them cause DS any problems, and the liver function test came back only just outside the normal range, so the specialist we saw said she wasn't concerned at all, and doesn't even want a follow up. We've been told to put Vaseline on the larger ones so they don't dry out, but don't need to do anything else with them.
Two things to watch out for: (1) if they crack, that's a sign of ulceration, which can be very painful. Take the LO to the doctor as soon as you notice this. (2) If they bleed, they'll apparently bleed fast, but, if you apply pressure, they'll stop bleeding quickly too.
One of DS's is already beginning to involute, aged 4 months. It can take into the teenage years for them to fully disappear, but there's rarely a sign of them once they do go. If it's large and/or on the face, you should see someone to help try to prevent any scarring from it, or if it's somewhere that could cause problems (around eyes, on genitalia, etc.).
I hope whoever it is that's affected by this doesn't have any problems from them!
Jen & Chris
happy parents to the beautiful Sander